Links: The Orphans Amongst Drugs

ORPHANET is a database dedicated to information on rare diseases and orphan drugs. Information about a rare disease, the specialized outpatient clinics, research projects and patients support groups can be found on this website.
- For further information: www.orpha.net

EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases all over Europe. EURORDIS represents more than 260 rare disease organisations in over 30 different countries, covering more than 1,000 rare diseases.
- For further information: www.eurodis.org